Links

Australia

• Fragile X Association of Australia

A non-profit organisation made up of family, friends, therapists, doctors and carers of people with Fragile X Syndrome. More details
Address
Suite 2, 4 Belgrave St
Manly NSW 2095
Tel: Tues/Wed/Thurs: Office 1300 FX INFO (1300 394 636)
– For Fragile X support other times: Mobile: 0409 987 012
Email

• Fragile X Association of Australia Forums – support forums for parents.
• The Human Genetics Society of Australasia
• The Genetics File (for Australian general practitioners)
• Centre for Developmental Disability Health, Victoria (CDDHV)

International Support and Research Networks

• The National Fragile X Foundation (NFXF) – The peak US support and research organization
• FRAXA – The primary dedicated Fragile X  research organization in USA
• Fragile X Listserve – an email  support and information exchange group  for everyone: parents, siblings, grandparents, other family members, educators, and friends. Run by FRAXA
• Carolina Fragile X Project
• UK Fragile X Society – provides support and information to fragile X families, promotes Fragile X awareness and encourages research.
• Fragile X Trust (NZ) – provides support and raises awareness in New Zealand